The purpose of the MTM-CNM Family Network is to unite families who are affected with Myotubular Myopathy and Centronuclear Myopathy. We are a community of families who believe in staying informed through social networking. Parent to Parent interaction provides much needed support when handling everyday stresses that accompany MTM children.

    The Myotubular Myopathy- Centronuclear Myopathy Family Network believes that education about the disease is useful in improving your child’s quality of life and  imperative in keeping MTM children alive. We will strive to accomplish our goal of unity by establishing a registry of affected families and their experiences with this devastating disorder. We have included contact information for each of the families so that you may contact them to learn more about their situation.  Whether you are a member of an already affected family or a new family that has just received a diagnosis, you bring a wealth of information and support to this community. By sharing our knowledge and stories we will be able to empower the whole community.