Kohen suffers from a rare genetic disease called epidermolysis bullosa (EB).  EB is a rare skin disease that causes the skin to blister with any sort of friction and it only affects 50 people out of a million. There is currently no cure and Kohen will suffer from this his entire life. Kohen can’t wear clothes with buttons, snaps, buckles or anything that could cause his skin to rub. His diapers can’t have any elastic and his arms and legs stay wrapped. He can’t even touch his own face without giving himself a blister.