Update
Update
Feeling thankful
We breathed a sigh of relief after a talk with Golden’s dermatologist and our lead oncologist. They are both under the impression that the JXG will not need treatment and will not amount to much. PHEW!
Just to be sure, we scheduled an appointment with the leading Histio specialist in the country, Dr. McClain of Texas Children’s Hospital. We will go to see him on Dec 11th.
The biopsy wound on Golden’s back has healed very well. However, the rash on his face persists. It does not seem to bother him and looks nothing like the papule that was on his back.
We have a follow up appointment with his dermatologist to further discuss the JXG and this pesky rash on his face. We’re thinking that he will give us some steroid cream for the rash since it hasn’t gone away with antibacterial cream. Of course we are hoping that is it not LCH, but that is always a possibility. We will have to wait and see what the dermatologist thinks. Hopefully he won’t want to do another biopsy.
The last few weeks have been filled with good times. Grandma Nahomi and Grandpa Henry are here and Golden is having such a good time with them. He wakes up every morning and says,“ Grandpa?” This has become his universal word for both grandma and grandpa. He squeals with delight every day that he gets to see them. It’s precious and also makes me think even more about moving back to CA one day so that he can see his extended family more often.
We shared a wonderful Thanksgiving with grandma and grandpa and spent a good bit of time talking about what we are all thankful for. Golden told us he was thankful for....TRAINS!
We are thankful for all of you who take the time to check in on our amazing little G. Thank you!
November 29, 2009 2:37 PM