I have created this web site to give you an insight into Kayla’s little life and the illness called Krabbe’s disease that she has was diagnosed with.

Since she was born our beautiful girl has touched a great many lives and continues to do so. 

Kayla Rose de Visser was born on Tuesday 10 June 2008 at Manly Hospital, and from the moment she arrived was the light of our lives.  Instantly our priorities changed and she was the centre of our attention.

Kellie and I didn’t know what the sex of the baby was, but I hoped for a little girl and Kellie thought we were having a little boy, although really it didn’t matter either way so long as we had a healthy kid.

For the first 2 months or so, things were perfect. Little Kayla fed well, and did all the things a little bub was supposed to do and more. Friends of ours had a little boy a week later, and we noticed that Kayla seemed to progress a little quicker than him, so we thought all was well.

Shortly after Kayla started to have problems feeding and becoming more and more restless, not sleeping at all well during the day or night.  Her failure to gain weight resulted in a trip to the pediatrician and what we thought was to be a week or so in hospital.

This started our roller coaster ride of highs and lows and Kayla’s eventual diagnosis of the fatal Krabbe’s disease. Have a look at ‘Kayla’s Story’ and this will give an idea of what Kayla went though. We hope to raise awareness about this particular type of leukodystrophy.

Our Kayla left us on 18 May 2009 aged 11 months. Now she is free from the disease that took her from us. We miss her so much. We will continue to update her blog now and then and Kellie and I appreciate your support.

Thanks for reading,

Adrian & Kellie